TWINSforever. Bentley will be in my heart... until we meet again...

http://www.icouldbeyourchild.org/liftedup.htm

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Monday, 01 August 2011

  • the day that I'll never forget...

    It's just hard to believe its only 3 years ago... seems like a very very long time had passed.

    I thought I can stay tough, I thought I can get through this day like all other 'anniversary' date.... I thought I will be feeling fine if I keep myself busy & focus on preparing for the Relay For Life.  Not that I don't have faith in God, Not that I am not focusing on my task... and not that I don't want to keep up the positive spirit with Chris & Austin. That shocking moment of my life is actually cannot be taken away from my memory...

    There were times I was proud of myself being so calm and confident in dealing with other things happened at home.  But on the day we found out Bentley's tumor, I finally understand that there are things that is out of my control... that I totally feel helpless... that made me feel so lost.  And the worst thing is... I couldn't keep the promise that I've told my kids... that I can protect and keep them safe from ANYTHING!!! I lied. I cannot!  I don't think anyone would understand how's that feels like...  :(

    Out of all those 'anniversaries', the diagnose day is the worst!!!  No one's gonna understand how shocking when the doctor told you your son cannot live more than a few months!... And they cannot do anything to make him well again. This is a moment of sadness that no one will ever understand. (Only those who had the same experience will...)  It's nothing do with my faith with God. My mom just surprise me with a response that she ask "I thought you have faith in God!"  I have faith that I will see Bentley again. I have faith that he's already been healed.  I HAVE faith in God, but I still CAN feel sad! At least, I still can fix kids dinner tonight... isn't this part of the grieving process?

    I trust that time will heal... at least, you might see me smile more through the years, or you might see me think more positive. But you might also see me with a sad face like today, because it's the day that had changed my life forever!

    ~ missing my Bentley boy until the day we will meet again heart

     

Wednesday, 24 November 2010

  • It's been 2 years already...

    Can't believe it's been 2 years... but it already feels like forever to me.  I miss holding you, I miss hugging you, I miss talking with you, laughing with you, drawing with you, building Legos with you, even making fun of Austin with you!! I MISS YOU BENTLEY!!!!!!!!!!!!

    Sometimes it still feel kind of unreal that you're not with us anymore. Really? But the reality tell me 'yes'.  Because everyday I am talking with your picture, smiling at your picture, hugging your stuff animals, and staring at your face through a photo frame.

    So often that I try to be strong, to be tough... it's hard! But practice makes perfect. So now, sometimes I don't even know if I'm really feeling sad or happy! It's just weird. I think I'm good at hiding my feeling that no one will easily know I'm sad when they see me smile. One minute I can be laughing, but next minute when I turned around... I might be spacing out and staring in the air. Hah, now that you all know... so if next time you see me with a smile and can keep talking & talking... I'm good.  But if you see my smile, but I give you short answers... you better give me a hug instead.

    Life is getting 'interesting'...  Finally, I'm learning how to be an adult!! It's not easy for me to get to this tough.  Thank goodness, I found my church just about 2 years before everything happen.  And once again, I feel 'protected'... by my FATHER again. And I'm glad I brought my 3 'babies' to know Jesus.  Because after all, it prepared them well for Bentley's 'big battle' with the tumor.

    We're blessed. With all that happened and happening, I have family & friends who love me so much. Thank you for all the supports with prayers and love. Sometimes it still feel like in a dream... but I have faith to my Lord.  I trust that HE will give me strength... I trust that HE will give me peace... and I trust HIM to be my guardian. Perhaps one day HE will answer me all the 'whys'.

    We're as busy as we should be and I'm still adjusting our new life style. Life with teenagers seems a bit easier than with toddlers.  I feel like we're more like friends nowadays.  Our new home seems to be much better than the last.  Living as a single parent is not as tough as I thought... only I don't get extra person to take them to school if I'm not feeling well. Well, I'm still learning how to be a better parent... and to be a better adult (...hope it's not too late for this one!)

    HAPPY THANKSGIVING to all!! I'm so thankful for my family and friends... for their continuing love and support.  And I'm so thankful for Christina, Austin and Bentley... for teaching me how to love.

    Last but not least... Please don't forget to PRAY for our many other big fighters and their families, who still fighting hard with the monster! PRAY for peace in all the families who has an angel!... and PRAY for a cure to all childhood cancer!

    "LOVE like a kid... PLAY like a kid... and FIGHT like a kid!!"

Sunday, 17 October 2010

  • It all come back in my mind again...

    It's been such a long time that I haven't update my blog.  So what have I been doing all these 5 months?  ...trying very hard to stay focus, keeping myself busy, putting more attention to Chris & Austin, and try to think positive!!  Keeping my smiling face at all times is a bit tough sometimes...

    Times flies,... and it's already the time of the year that my body and soul automatically 'rewind' back to what had happened.  We're now counting down to Bentley's 2nd Angel~anniversary in another month.  It just feels like it's been so long... 2 years sounds short when we having good times.  But for me... 2 years without Bentley is like the longest.  Sometimes I will feel fine, but sometimes it will just sick to my stomach when I look at the calendar and try to recall what was happening..

    Wondering how can a broken heart be fixed if a part is forever missing?!

    Ughh... it just sucks!.. I don't like this!!

Saturday, 22 May 2010

  • Blessed...

    Wow, can't believe it's been that long since my last post.  Things have been keeping me so busy here and there... and everywhere!  I missed writing my blog, not because I want to tell everyone everything about my 'new life' but have the opportunity to express myself, which I think it's the best way to relief some stress inside my mind.

    Today is 1 1/2 yr since Bentley passed.  Thinking about it, tears just came down automatically as I'm typing... but it will be so automatically stopped when my mind goes to think about something else.  I actually think this is so weird and relate this to some sort of mental issues!  I always wonder how I can live with a mix feeling for the rest of my life?... One second I'm laughing, a few seconds later I will  be sobbing... this usually happen when I'm making dinner.  I was giggling with Chris & Austin, then I turn around and cry with an onion!!  Not because of the ONION itself, but it's the story behind it that makes me cry.

    It's all the memories of Bentley that I don't want to miss out and forget.  Whenever I cut onions, and you all know it will make you cry because... it's an onion!  But whenever Bentley saw me cry over an onion (we called it 'having the onion eye'), Bentley would come over and ask if I want to borrow his goggles!!  He has a great sense of humor, but I think it's more on the caring side.  And when I say I don't want his goggles, he would say, so let me have the onion eye too!  Bentley wants to see how and why an onion makes tears!  Then he would get close to the chopping board and keep blinking his eyes..... suddenly he'd screamed and fled to Austin and yelled.... "ahhhhh,  I got the onion eyes!!!!"... so funny!  It just makes me smile to think about all his funny things.

    I just missed all these fun times... now that Chris & Austin are both jr. high kids, we are having 'big kids' life - BUSY!  We are in another stage of life I guess.  And I am adjusting myself to be a mom of teenagers, no more baby talk.  But I really missed it.  May be that's why I like my job being with the little kiddos.

    On Mother's day, I think I have a 2nd experience of Bentley's 'visit'.  We were at the park with my parents and my brother & sister's family.  Kids were playing with the cousins and adults were chatting.  Suddenly there's a bird flew by and landed next to us.  The distance was close enough to say it's among us.  And you will seldom have a bird stayed so close to you if you're not feeding them.  Seemed like it's watching and looking at us.  We're so quiet for a moment tried not to scare it away,... I looked into it's eyes and think... 'are you Bentley?'  Then I told Austin, 'may be it's Bentley!'  'He came to say Happy Mother's Day!' my sister said.  While I was so excited to get my camera, I think I saw tears in my mom's eyes.  Gosh!... I can't cry.  I have to capture the moment!  Had a pleasant and calm feeling while I'm looking at it through the camera.  Seems like it just let me taking my time to get the right picture.  I remembered every seconds I looked at it.  And the feeling of 'it is Bentley' seems so strong.  No matter there is any scientific proves or not, I am taking it as a yes... there is 'visit' after life.  And I love it!



    ... it has Bentley's 'feature ~ nice & clean... and getting tall!  I actually don't see another bird like this in the park that day.



    This picture took me almost a minute to get Austin & his cousin to post for me.  And the bird was standing there so still until I was satisfied with one.

    After all, it's all the blessing from above.  HE gave me bad experiences to make me grow.  HE gives me helping hands when I'm uncertain... and HE gives me good times to know that I'm loved.

    Yay! I finally made a new update!  We'll be going to watch Christina singing and dancing tonight at her school choir show.  Last night I was doing some volunteering at the snack bar, and get to 'work' with other parents.  It was a fun night!

Friday, 15 January 2010

  • New year, new beginning...!?

    The excitement of welcoming our new number.... 2010 came & went by so fast.  Everything seems to be back to normal.  School, work, choir practice, cousins' weekend play date... & housework... really sounds like EVERYTHING!  But some how for some reason, I still can't be the REAL me!  I smile, because I'm trying to be polite... I laugh like silly, just because it's a natural response to some funny things.  And I began to notice something... every time when I smile/laugh... few seconds later, I will be thinking 'what so happy about it'?  It's not like Bentley can be here with us again!?  Although, with my faith, I know Bentley is now free from any sickness... and he's in the best place ever.   I always heard people saying 'oh, she's just like an angel!' and seems to sound cute!  But now I don't!!!  Do you really want to call your children 'angel'??  Ok, that's kinda of random...

    This a Christmas present for myself... that I finally found to put Bentley's picture in it!

     

    It's just so relax coming back home for lunch between works. I like the quietness & getting to use the computer, without having Chris or Austin asking behind me 'are you done yet?'  Haha,... sounds so silly!  And best of all, I had a feeling that I am with Bentley at home.  Sometimes, it's funny that I always told Austin that Bentley is going to school with him... so as to let him know he's not alone! (like before...)  But then, I had the feeling that Bentley is at home with me.  I don't feel him at work though....  Angels can be everywhere, right?! <3

    Am I random again?  Well, I like the quietness, because it makes my brain THINK!  no matter it's silly or serious.  my brain is working!

    The 'troubles' in life seems never stop. And routines always make us chasing after time.  The other day, I was just thinking... adult life is just not fun!  Why kiddos always want to be an adult?  Work, family, relationship, friends... so many dos and don'ts that we can't just expect a simple answer!!  Things are not just yes or no, it is more complicated than I thought!  Oh well, may be just me? or not?... that I don't know.  But I've learned a LOT during this process.  Although I don't really like it, but I thank God for giving me such a HUGE challenge to make me grow.... spiritually and mentally... and may be physically too!

    Life seems so much calmer these days,  although there's not much difference with or without him as for the work load at home.  But I feel like I can breath again.  Relationship is just one complicating thing.  Still waiting for God's clue to the next step....

    Choir!! I am so happy and blessed to be in the church choir.  This is where you can see my REAL smile.  I can feel the real happiness in HIM.  I feel special that I can praise HIM with my voice.  Few days ago, I was so frustrated while driving Chris & Austin to school... then I have to hurry back to work.  It's like a 30mins drive each way. After they got off the car, I listened to the CD for the choir practice.  Once I hear it, I feel much calmer... And when I start singing & practicing the new songs... all the bad mood went away! and began to enjoy beautiful morning sky while driving!  Isn't this wonderful?

    Please continue to pray for all the families and children who are still fighting with DIPG.  And the families who have angels... Pray that there will be a cure for this monster, that no more kids have to suffer, and no more heartbreaking parents.

    ~ Keep Breathing

loveubabies

  • Visit loveubabies's Xanga Site
    • Name: freda's studio
    • Gender: Female
    • Member Since: 9/11/2006

About Me

  • In memory of my son, the younger twin... dx w/ DIPG (diffuse intrinsic pontine glioma) on 7/31/08. It's a rare and progressive as well as incurable brain stem tumor. Bentley's been fighting it with courage and faith. He earned his wings on 11/22/08 after 3 months and 22 days battling with this 'monster'. Bentley will be forever in our hearts... He will be forever 11.

Chatboard (3)

  • cherylAKAsugie
    sweety , you grieve in your own way and your own time. don't let anyone tell you how to grieve. my daughter is going thru the horrible grief that you are. she lost her oldest son ( my sweet grandson ) ( Dae Hon ) he will forwvwr be 10 yrs old. He lost his battle with DIPG after only 9 months of
  • LynnGold
    Dear Freda, Thank you for your call. I was so saddened for all of you, yet relieved, too, when I heard that Bentley had moved into spirit and into Jesus' arms, as you said. Reading your blog I know what a fight you have put up, how you have shown your children and family and frriends what a Warrior
    • Posted 11/26/2008 11:17 AM
    • by LynnGold
  • irishmamax4
    Hello Tao family, We are the Reilly's from VA. Our son Liam was diagnosed with DIPG 4/24/08. I had never read your son's story before today. I was so moved. Our son Liam is an identical twin and when I saw your two boys my eyes filled with tears. Liam and Owen are only six and we are blessed that L

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